By Elinor Greenwood
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2003), ‘Governing beyond the Centre: A Critique of the Anglo-Governance School’, Political Studies 51:3, 592–608. Marris, E. (2004), ‘Suppressed Study Raises Spectre of Flawed Drug Regulation in US’, Nature 432, 537. S. A. (2005), ‘Conflicted Scientists: The “Shared Pool” Dilemma of Scientific Advisory Committees’, Public Understanding of Science 14:3, 285–303. Michaels, D. and Wagner, W. (2003), ‘Disclosure in Regulatory Science’, Science 302, 2073. Mitchell, P. (2004), ‘“Self-interested” FDA Accepts Reform after Vioxx Fiasco’, Chemistry and Industry 22:4 (15 November 2004).
Social Inequality Fears about genetic discrimination and a new form of eugenics raise the issue of genomics-related social inequality. Specifically, unequal access to such new technologies can exacerbate an already unequal society that widens the gap between rich and poor. What does justice demand in terms of steering genomics? Are people entitled to genetic enhancement, treatment and prevention of disease? Does global justice require that genomics-related innovations be shared with those in poor countries that cannot afford to develop technology?
The three chapters in this section all address the same question in different contexts: who are the actors involved in the governance of new life sciences and what limits their involvement? In Chapter 9, Kanellopoulou looks at the role of advocacy organizations in the governance of genomic research. These organizations promote research in rare diseases, engaging large numbers of patient families. According to Kanellopoulou, this role has become increasingly important with such groups operating as gatekeepers for biomedical research activities and funding.
EyeWonder: Rain Forest by Elinor Greenwood